January 30, 2008 · 2:09 am
We are home from hsopital now. Thank goodness for that. Hospitals are noisy, busy places. I do not believe that any one ever goes there for rest and recovery!!
Philip is doing well. We left the hospital with a bucket full of medications (I am not even close to joking…). My Pete and I have to keep a list of what we give him and when so that we don’t confuse ourselves. They are all working together to provide him with pain relief. He is still tired, but that is to be expected. He lost two kilograms in hospital. He is as skinny as a stick. I gained four kilos to make up for it by eating from the chip and chocolate machine just beside his room.
We are looking forward to the plane trip home in a couple of days. Me, because I want to be in my own house. My Pete, because he wants to potter about and do stuff – rather than sit in one place. Pip, because he desperately wants to set off the metal detectors and tell security that he has a metal bar through his chest wall.
He shouldn’t gloat though… aeroport security might not take kindly to that!
January 26, 2008 · 5:59 am
Today all tubes and medical equipment (including the machine that goes ping) were removed from my son. Getting rid of the epidural has allowed his blood pressure to stablise and he is no longer turning pale whenever he moves. I feel much better about this. The physiotherapist has him up and walking, he is doing laps of the ward with the other old men in cardio-vascular.
He is able to stand himself up, sit himself down and walk without any problem at all. He is still having difficulty getting from laying down to sitting up, but that will come. He is not eating terribly much, but has sent me on a quest to find him some chocolate milk, the sustenance of every thirteen year old boy!
Today he had some more x-rays taken. The doctor also wrote a letter:
To whom it may concern,
Philip Petersen has a metal bar in his chest wall. This may set off metal detectors.
We have to take it with us when we go through security at the aeroport.
Pip read it and added, in a dodgy accent, “As a result of an unfortunate schmelting accident…” (Austen Powers reference.)
He’s being a smart-arse again. He’s on the mend.
I slept much better last night and am feeling far more sane too. The end is in sight. Thanks for all of your support. I’m sorry that I haven’t had the time to respond to all of you. You are all treasures!
January 25, 2008 · 3:26 am
Today I am tired.
I am tired of a bed that is so hard it hurts my shoulders.
I am tired of eating lean cuisine at 10pm in said hard bed.
I am tired of shopping at the quickee mart.
I am tired of water-saving shower nozzles that wet the back of my head and the back of my knees simultaneously leaving the rest of my body dry, yet somehow soak the bathmat which is outside behind a closed glass door. (with our giant brains and opposable thumbs, surely this is not the best we can come up with to save the planet… come the revolution… come the revolution!)
I am tired of seeking a laundromat to wash our clothes.
I am tired of walking back and forth up the hill to the hospital with people who have squeaky shoes and forget the keep left rule.
I am tired of eating crappy food because it is easier than trying to find something decent.
MOST OF ALL, I am tired of being so damned far away from my people.
EVEN more than that, I am tired of watching my son lose all the colour in his face every time he’s asked to do something. He is very compliant. He will swing his legs to the edge of the bed, take a deep breath, stand himself up, take bigger steps, lift his legs, lower his legs, blow in the tube and have a needle. He will do it all without complaint, but it hurts him and it exhausts him. I just sit and watch. I am tired of feeling useless.
January 23, 2008 · 10:33 pm
Yesterday Philip was able to move from intensive care to the ward. This was earlier than expected, but he was doing so very well. The scenario, as always, is baby steps and last night he had a fever and so took a small step back. Nothing of great concern, but we were so thrilled with his recovery so far that we had lulled ourselves into thinking that it would be a breeze.
I am amazed at his fortitude. I had thought that he would be a sooky, whingy patient, but he is being incredibly resilient. He is so much like me. He is asking a million questions. He spoke to us very knowledgably about his progress and care yesterday. Some Pippy quotes:
“Each night I receive an injection to prevent blood clots. It is easy for a blood clot to form when you are laying still. It is much better to prevent them than to have to cure them.”
“My blood pressure dropped last night. It made me quite woozy and pale.”
“My lung capacity is quite good for someone who has just had chest surgery. I just need to work on expanding it over the next few days.”
“I am numb from here to here (on his chest). That is the best place for an injection.”
“The anti-biotics are injected directly into the IV. You can feel them going in, that’s OK though. It means that they are working.”
Every one of these statements is a question that he has asked. The staff has been so patient in responding to everything. He is using medical jargon like a pro.
January 22, 2008 · 9:31 am
The surgery is over and went really well. The doctor is delighted with the results and his chest looks amazing – completely different (like a real boy’s). We had to buy a mirror so Philip could see his new body.
He is feeling no pain at all. (Incredibly, seeing he just had eight ribs effectively broken!) The epidural is doing its work. He has just drifted in and out of sleep today as his body recovers. He is in intensive care and will remain there for the next few days. This is a good thing. He is getting lots of attention. We saw the post-surgery x-ray and were astounded. One doctor listened to his chest and said that he could hear no evidence of a heart murmur. This information alone gives us enormous peace of mind and confirms to us that we made the correct decision.
I am grateful for all of the messages of support, even though I have not managed to find the time to respond to all of you. Melinda, he loved the pinata joke (it doesn’t hurt to laugh when you are so full of drugs!). Kirsty he was delighted by mag-neat-o in his spotty pyjamas. (you are a clever girl, although he thought that perhaps Ali had done the brilliant illustrations)
Ashleigh made it safely to Paris. It took 37 hours. When she spoke to us she sounded small and exhausted. Her body clock will be way out of synch and no doubt take a few weeks to sort itself out. She better hurry up though, because we want to see a photo of the house where she is staying. As we all know…it’s all about what we want!
January 19, 2008 · 4:26 am
At five o’clock tomorrow morning we all walk out our front door. The next time we are here in our family home together transformations will have occurred in both of my children. This is a positive thing. After a crappy few weeks there will only be growth. I marvel at the optimism of the human race, because quite frankly this week has been truly sucky for a number of reason. Yet we are still talking, joking and laughing. (by the rule of threes, you know three bad things happen in a row, we are now about to start on a good cycle)
SO… communication, keeping in touch. Ashleigh has started a blog. There is nothing on it yet, but she will post photos of stuff in France. Photos to make me jealous and proud. She thinks that she won’t have to ring me quite so much if she blogs, but HA, like that’s going to be OK! I’ve already bought a phone card that lets me ring her mobile in France from my home phone for just 2.5cents per minute. I have thirteen hours of talk time in my hot little hand right now! That should last at least a fortnight…
There is a story behind the name of her blog. I bought a learn to speak French CD and ‘le guide est tres gentil’ is one of the phrases. It means that the guide is very nice. I tried to impress a French exchange student with the phrase, telling her that I would use it when I went to France. She looked at me with a deadpan face and said, “Yeah… I don’t think you’re going to need that.” CUT DOWN, by a seventeen year old exchange student!
The hospital has an email a patient page. If you would like to send a message to Philip after between Tuesday and Sunday I’m certain that he will appreciate it. If it involves fart humour all the better, although I’m not yet sure if it will hurt to laugh. (why does every surgery make it hurt to laugh when laughter is the best medicine?)
Apart from that I may blog sporadically over the next couple of weeks. I thank all of you for your generosity, kindness and gentle good humour. You are an amazing bunch of bloggers, so I’ll leave a song for you.
Just purse your lips and whistle that’s the thing….
January 17, 2008 · 9:19 am
Today it occurred to me that my son generally sleeps in a singlet. Perhaps he should have a button up pyjama shirt if he is having chest surgery. Off I went to a major shopping centre. I visited five different shops, but there were no button up pyjamas for boys to be found! Eventually I visited a chain store of men’s clothes. In the whole massive, overstocked shop they had just two pairs of small men’s button up pyjamas.
They are hideous, they look like old man’s pyjamas. I showed them to my son who said, “Well, at least they’re not pink.”
I bought them out of necessity. I don’t think that fashion will be a high priority for him for the next two weeks. I feel like crying over the pyjamas, everything is making me sad now…
January 15, 2008 · 4:13 am
We have had 300mm of rain in one night. A low pressure system crossed the coast above us causing wind squalls and heavy rain. Castle Hill is usually a barren rock in the middle of the city, but today it is shrouded in cloud and sprouting waterfalls where none previously existed.
On just the day to stay at home and sew, we had to go to a Civic Reception at the Mayoral Rooms for the Outbound Rotary Exchange students. There was some water lying on the road as we headed into town, but it wasn’t too bad. My daughter was interviewed by local radio, TV and newspaper, making her a multi-media star.
Look at that poise!
By the time we came home (an hour and a half later) small puddles had become wide lakes. I would have just stayed somewhere high and dry until it all dried up. My Pete, however, decided to be action man and just drove right through. Can you even see where the road is and where the footpath dips away?
I’m in the passenger seat, almost wetting my pants everytime we hit a hole in the road…
We did make it home, but I had to go and lie down.
January 13, 2008 · 11:34 am
The invitations were issued:
Red, white and blue abounded:
The friends and family patiently waited:
The guest of honour had not a clue:
Speeches were made, toasts were drunk, a quilt was signed:
There are still six days until she leaves. We surrounded her with love last night, she’ll carry us with her to Europe. You can’t outgrow something sewn under your skin.
January 11, 2008 · 11:44 am
While we were in Sydney some very brave bloggers elected to meet with me. There are lots of rumours going around that all bloggers are either hairy men or axe-wielding nutters. I can vouch for Blue Mountains Mary and Aunty Evil though.
We met with Mary and her son for Yum Cha lunch in Chinatown. We would never have even found this place without Mary’s local knowledge. Afterwards we went to the Powerhouse Museum. Mary’s son took a shine to my son and led him around the highlights of the museum while Mary and I marvelled at the Princess Diana exhibit. Mary generously gave my daughter a bag of scarves to take to France.
Aunty Evil was extrodinarily generous and picked us up from the hospital and drove us to a shopping centre. I live in a place where everything is fifteen minutes away. Aunty Evil drove for one hour to get us and one hour home again. That is an outstanding effort! We ate lunch and laughed together.
The funny thing about meeting with blogger is that, without realising it, you attribite a voice to them. When you actually hear them speak it is a little bit freaky. It takes a moment to attach that voice to the personality that you know. On both days I felt like I was just picking up with a conversation that had already begun. It certainly didn’t feel like a first meeting. I knew things about them and they knew things about me which were meant that a lot of that getting to know you stuff was done. We were able to fill in some gaps about each other and create a context for each other.
I am amazed how far they went out of their way for us. I am humbled by their generosity and their kindness.
My Pete said to me afterwards, “You know, it seems that bloggers are really just normal people.”
That is a noble attainment – congratulations, you are normal.